Deal
Breaking the Silence

Home Page

About us

How DEAL helped us:
DEAL clients tell their stories

How DEAL can help you

SCI -
Severe Communication Impairment
AAC -
Augmentative and Alternative Communication

FCT -
Facilitated Communication Training


The Right to Communicate

How you can help DEAL:
Join, Donate, Volunteer


DEAL Donation Button

Resources

Links

Shop


DEAL works with people
with Rett Syndrome


Rett syndrome is a rare neuro-motor disorder which mainly affects girls.  Girls with Rett syndrome usually lose their ability to talk and use their hands functionally before the age of two.  Some lose the ability to walk.  Doctors used to think that the cognitive skills of girls with Rett syndrome were as severely affected as their speech and motor skills.  This perception has been challeged by the achievements of girls given access to appropriate physical therapy and augmentative communication strategies.  The present consensus view is that given on the International Rett Syndrome Association website -

"Apraxia (dyspraxia), the inability (or reduced ability) to program the body to perform motor movements, is the most fundamental and severely handicapping aspect of RS. It can interfere with every body movement, including eye gaze and speech, making it difficult for the girl with RS to do what she wants to do. Due to this apraxia and her inability to speak, it is very difficult to make an accurate assessment of her intelligence. Most traditional testing methods require her to use her hands and/or speech, which may be impossible for the girl with RS. Her mobility may be delayed and she may have difficulty crawling or walking."

Most girls with Rett Syndrome who have come to DEAL have been able to establish enough communication to show that their underlying learning capacity is unaffected.  At DEAL we'd be very reluctant to conclude anything about the intelligence of a person with Rett Syndrome (or any person with a diagnosis of intellectual disability) until we'd seen what measures could be taken to improve their physical abilities and their communication methods.






DEAL Communication Centre Inc.,
538 Dandenong Road, Caulfield, Victoria 3162, AUSTRALIA

Ph. (61-3) 9509 6324
Fax. (61-3) 9509 6321
e-mail: dealcc@deal.org.au
DEAL has now seen over 2,000 clients with diagnoses that  include

 Autism/ASDCerebral PalsyDown Syndrome,  Intellectual Impairment,   Learning Disability,   Fragile X SyndromeRett SyndromeStroke/CVA, 
Persistent/Permanent Vegetative State,  Acquired Brain Damage,
Motor Neurone Disease/ALS, and Huntington's Disease.
              
DEAL has been able to help people with all of these diagnoses to communicate.