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SCI
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Severe
Communication Impairment
AAC
-
Augmentative and Alternative
Communication
FCT
-
Facilitated Communication Training
The
Right to Communicate
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DEAL works with people
with Rett Syndrome
Rett syndrome
is a rare neuro-motor disorder which mainly affects girls. Girls
with Rett syndrome usually lose their ability to talk and use their
hands functionally before the age of two. Some lose the ability
to walk. Doctors used to
think that the cognitive skills of girls with Rett syndrome were as
severely affected as their speech and motor skills. This
perception has been challeged by the achievements of girls given access
to appropriate physical therapy and augmentative communication
strategies. The present
consensus view is that given on the International Rett Syndrome
Association website
-
"Apraxia (dyspraxia), the inability
(or reduced ability) to program the body to perform motor movements, is
the most fundamental and severely handicapping aspect of RS. It can
interfere with every body movement, including eye gaze and speech,
making it difficult for the girl with RS to do what she wants to do. Due to this apraxia and her
inability to speak, it is very difficult to
make an accurate assessment of her intelligence. Most
traditional
testing methods require her to use her hands and/or speech, which may
be impossible for the girl with RS. Her mobility may be delayed and she
may have difficulty crawling or walking."
Most girls with
Rett Syndrome who have come to DEAL
have been able to establish enough communication to show that their
underlying learning capacity is unaffected. At
DEAL we'd be very reluctant to conclude anything about the intelligence
of a person with Rett Syndrome (or any person with a diagnosis of
intellectual disability) until we'd seen what measures could be taken
to improve their physical abilities and their communication methods.
|
DEAL
Communication Centre Inc.,
538 Dandenong
Road, Caulfield, Victoria 3162, AUSTRALIA
Ph. (61-3) 9509 6324
Fax. (61-3) 9509 6321
e-mail: dealcc@deal.org.au |
DEAL
has now seen over 2,000 clients with diagnoses that include
Autism/ASD, Cerebral
Palsy, Down
Syndrome, Intellectual
Impairment, Learning
Disability, Fragile
X Syndrome, Rett Syndrome,
Stroke/CVA,
Persistent/Permanent Vegetative
State, Acquired
Brain Damage,
Motor
Neurone Disease/ALS, and Huntington's
Disease.
DEAL has been able to help people with all of these diagnoses to
communicate. |